Looking Good

Little Miss Minion had a follow up MRI this morning to make sure that the old shunt is working, the ETV is working, the new shunt is working, and that there aren’t any pockets that aren’t being drained by the aforementioned methods. And the verdict is….Cleared until February 2016! The neurosurgeon was “ecstatic” and “very happy” with how her MRI looked, so hopefully we are in the sweet spot where everything is in balance.

Her physical therapist is pretty happy with her lack of regression over the past month. We’ve had to cancel 2 sessions because she was either in the hospital or still recovering. Usually, babies regress much more after surgery and she had two in two weeks.

She’s started playing with her toys more. She grabs them and actually grips things. After her bottles and 20 minutes of upright reflux rest, we usually lay her down on her mat and let her play with her toys. They hang from a support so she can bat at them and grab them. Her favorite is a zebra that Mr Minion named Paul, because “why not?” Next is a fish that I named Joe after Joe Pesci, whose real name is Joey Fisher. Then we realized that we had Joey and Pauly, the Goodfellas gangsters, so we named a doll that she loves Marie, since all the guys were married to girls named Marie in the movie.

She holds rattles, sucks her thumb, puts everything in her mouth, sucks on clothes, her hands, toys. She smiles and laughs all the time. She’s really nailed rolling onto her side, but she can’t quite make it all the way over consistently yet.  Her abs are not as strong since they added the second shunt and catheter, but she’s bouncing back really well.

She got her first RSV shot this week. She’ll get one per month for 5 months to help boost her immune system’s response to rsv. Most recent weight: 11 pounds,  9.3 ounces.

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4 thoughts on “Looking Good

  1. It sounds like you have been through a lot since I last read your posts. I wasn’t aware that ETV was done on babies. Praying for all of you and hoping this is it for now for your LMM. I think life can give her a bit of a break…she deserves it. Remember, I am here if you need to talk.

    Liked by 1 person

    • She was too little for it when we were discussing our options the first time around. She only weighed like 4 pounds. I just can’t get over the technology that exists. I wouldn’t think the mechanics of it would be possible on an adult, let alone a Preemie.

      Liked by 1 person

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