Tag Archive | milestone

An Announcement

I cannot believe that Little Miss Minion will be 4 in a few weeks! Looking at her now, you would never guess that she started out fighting for her life at less than 2 pounds. Our journey began four years ago today in 2015, when I was admitted to the antepartum ward for observation of suspected preeclampsia. I remember being torn between complete denial that anything was wrong and terrified at the idea that something was. When Little Miss Minion arrived at 28 weeks, weighing one pound and fourteen ounces, my life was put on hold. Every day, Mr Minion and I would go to the hospital, scrub in at the NICU, and spend as much time as we could in our room there with our daughter. After 84 days, we were able to take our multi-million dollar baby home and I never wanted to see the NICU again. 

 

After about a year, I started to feel like I needed to give back to the place that had given me back my daughter. I began volunteering at the NICU that Little Miss Minion spent her first three months of life. I go into the unit, visit each room and speak to any parents who happen to be around. I’m also a board member of the organization. It’s something I’m very passionate about. 

 

About a year and a half ago, Mr Minion and I had a long talk. As corny as it sounds, I had been feeling a calling from the NICU. Not just to visit the parents and drop off goodie bags. To actually become one of the nurses who make such a difference in the lives of these babies and their parents. I’m proud to announce that I have been taking classes at our local community college in pursuit of a degree in Nursing. I have two more semesters to go before I can begin nursing school, which will take about two years of full time classes. After that, I hope to get a job working as a nurse in the NICU that started this journey for me. 

 

I would like to give Mr Minion a digital standing ovation. He has been so supportive of me during this venture and has willingly taken on the extra slack I leave from being in class and studying. Between books and fees and tuition, this little adventure isn’t cheap either, so it has been stressful trying to make the finances allow for it, especially for the upcoming period of nursing school. Little Miss Minion deserves some credit too. I take evening classes right now, so sometimes I only see her in the mornings and she doesn’t get to see me before she goes to bed, since I come home a little after she is asleep. 

 

Once I am accepted into the nursing program, I will qualify for nursing scholarships, which should lighten the financial load considerably. I applied for general scholarships this semester, but there are a lot more available once a person is accepted into the program. I’ve got Anatomy & Physiology I this fall, A&P II in the spring, and right now, I am finishing up Microbiology. I took Chemistry before that, and my first class in this little adventure was Human Biology. The rest of the degree requirements transferred from my Bachelor’s Degree in English Education. I only had 5 classes to take in order to shift my Bachelor’s in English into an Associate’s in Nursing. I’m just taking it 1 semester at a time. 

 

Sooooo, that’s my little announcement. Surprise! I wanted to really commit to this path before I announced anything, so very few people in real life actually knew about this. Pretty soon, you’ll be able to call me Mrs. Minion, RN. Wish me luck!

 

 

 

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Three Years of Blogging

Three years ago, I started this blog as a way to update friends and family about what was going on with Little Miss Minion. Our cell phones were blowing up with messages and phone calls, all wanting to know the latest on our little family. It was nice that so many people wanted to know how we were doing, but cell phones are a NICU nightmare for germs. I created this blog as a way to update everyone at the same time, reducing our need to touch our phones while in the NICU, and cutting out the time it took to answer everyone individually. This let us have more time to spend together, sitting on the couch in our room in the NICU, staring at the tiny little human growing in the incubator.

To everyone who reads this, thanks for being a part of our NICU journey.

Happy 3rd Birthday!

Little Miss Minion turned three about ten minutes ago. It’s hard to believe that we started this journey three years ago with a one pound fourteen ounce 28 weeker and now we’ve got a little kid who just graduated from all of her therapies and loves to give hugs and eat cheese its.

We are so lucky.

End of an Era

A few weeks ago, Little Miss Minion had a special education evaluation through our school district. They did a series of tests to see how she performed in several areas, like speech and gross motor skills. This morning, we got our answer. Little Miss Minion has been disqualified for further services. This means that, according to the school district, she is caught up with her peers on gross motor skills, speech, language, and cognition.

It’s a strange feeling to know that we don’t have to schedule weekly speech therapy and physical therapy anymore. We’ve had someone come to our home to work with LMM ever since she came home from the NICU. So many appointments, tests, clinics, screenings. Part of me is a little in denial. How can my one pound fourteen ounce 28 weeker NOT qualify for additional services? She’s had five brain surgeries! She has actual brain damage (called periventricular leukomalacia). She spent the first 3 months of her life under 24 hour care in the best NICU in our area.

She caught up. That’s how she doesn’t qualify. Not only did she have to consciously learn to breathe on her own, how to suck, swallow, and breathe while taking a bottle, how to regulate her own temperature, how to regulate her heartbeat, how to live in the world three months too soon, but she did all that and more. 36 months after her dramatic entrance, she’s caught up to where she should be. At this rate, who knows how far she can go?

Our next steps are to come back for another evaluation (if we feel like she needs it) in about 7 months and to continue to be utterly impressed by our little rockstar.

1000 visitors!

Whaaaaat?!

Yep, this little blog has reached over 1000 people. There’s something like 3800 views and 1000 unique visitors. Wow.

Thank you, dear readers, for coming by and seeing my little slice of life. I’ve had a ton of new email subscriptions and I don’t know any of you! Say hi!

Special Education Evaluation

Tomorrow is a big day for Little Miss Minion. Since she turns three in May, she ages out of the program that has been providing her speech and physical therapies. From here, she either graduates from therapies or she transitions into the local school district to receive services through them. Tomorrow is her evaluation. They will test her in cognition, expressive and receptive language, gross motor skills, and fine motor skills. There are a bunch of percents involved and she has to score below some deviation blah blah blah.

I don’t know the math involved but they take all her scores and compare them to where she “should” be. So basically this is where we find out if she’s caught up to her actual age vs her chronological. Since she was three months early, we adjust her age for three years. Theoretically, she should be caught up by her third birthday. Tomorrow, she’ll do the tests that will tell us how caught up she is.

If she doesn’t qualify, we could always pursue private therapies if we wanted her to continue. Or we could be done until she needs future evaluation. It’s a balancing act. Do we cut the cord and see how she compares to her peers in kindergarten? Or do we pay out of our pocket for therapy that the school district has determined she doesn’t need?

Or does she qualify to continue services through kindergarten? We’ll find out soon!

Reindeer & Santa

The Christmas Season has arrived and Little Miss Minion is learning new vocabulary to go along with it. Yesterday, she asked for “reindeer song” in the car on the way home from daycare and then asked “santa coming?” off and on for the rest of the evening.

She is talking much more since her surgery and my theory is that the fluid was slowly building up and pushing on the part of her brain that controls speech. Less pressure=more talking. Some of her delay could be due to the PVL (essentially, this is dead or damaged brain tissue) but it’s hard to know for sure.

This spring brings the expiration of her enrollment in the early intervention program that gives her physical and speech therapies. She probably won’t qualify for PT since she is pretty much caught up with her peers, so that will be one less specialist. Speech is a toss up right now. There is a big jump coming in expectations and if she doesn’t keep up, she might qualify for services through our local school district. I have a feeling she will still qualify but she’s improved so much over the past few weeks, it’s hard to tell.

Hoping everyone is having a cheery holiday season so far! Remember to wash your hands and keep the cold/flu/RSV germs away!