Here are some common terms that will be found in this blog:
Adjusted age: chronological age minus amount of prematurity. Used primarily for the measuring of milestones. Example: if a baby is born three months early, when they are six months old chronologically, they will be three months old adjusted (six months minus three months early)
Apnea: breathing pauses. This is caused by prematurity and will be grown out of eventually. Sometimes called A’s.
Bradycardia (Brady): slow heart rate. Usually caused by apnea, also caused by prematurity. Sometimes called B’s.
Blood oxygen saturation: a measure of how well her blood cells are carrying oxygen. See “satting” and “desatting” for the positive and negative forms. Desats also called D’s.
Chronological age: age based on birthday, with no adjustment for prematurity.
CSF: cerebrospinal fluid. Gatorade for your brain. This fluid surrounds and fills spaces called ventricles in your brain, carrying nutrients for the cells.
ETV: endoscopic third ventriculostomy. A procedure in which tiny holes are poked in the membrane between the ventricles in the brain, allowing the CSF to flow between them instead of building up in pockets.
Hypertonia: condition where the muscles are too tense, or always tightened.
Hydrocephalus: a condition in which fluid accumulates in the brain, usually due to a blockage.
NICU: Neonatal Intensive Care Unit.
Orthotics: special footwear that helps stretch LMM’s foot and toe muscles so she will walk flat footed
Picc line: durable IV that stays in for a long time, as opposed to a regular IV that needs to be changed every few days.
Ventricle: space in the brain that holds CSF.
VP shunt: ventriculoperitoneal shunt. A piece of medical equipment that is surgically implanted in the ventricles of the brain to help drain CSF and prevent brain damage.
If you see a word or term that you don’t recognize, let me know and I’ll add it.