Tag Archive | preemie protocol

Summer Update

It has been an interesting summer here at the Minion House. We’ve had lots of walks, lots of time “at the pool” in the backyard (kiddie pool), gardening, tomato picking, and more recently, our area has had an explosion of Covid cases for reasons I can’t get into without wanting to throw my computer through the nearest window. This recent burst of activity has thrown a wrench into the local school district’s reopening plans, and is also impacting my nursing program’s plans.

The official plan for Little Miss Minion’s school won’t be coming out until this week and we will have one week to choose which option we want to do. It sounds like there will be an all in person plan, a hybrid plan, and an all virtual plan. The district has not mentioned what the protocols will be for transportation of kids, eating lunch, bathrooms, masks, etc., but these will hopefully be addressed in the official plan. I’m curious to know what the procedures for a sick child will look like as well, since children do tend to be germ factories even when there is not a global pandemic happening. And does Little Miss Minion still have preemie lungs and a depressed immune system? I don’t want to use this disease as the test.

My school is also altering the plans, but I don’t have a clear picture of what that will look like yet. They have mentioned livestreaming lectures with the option to come in person, virtual labs with in person check off days for skills, and generally trying to give everyone the option to go online where possible. It sounds like clinical days will remain the same, but the partner hospitals have to agree and I don’t know if many of the local ones have enough PPE for their employees, let alone a bunch of students who can’t really do much in terms of patient care. They hope to have more information released this week as well.

Soapbox Moment

As a preemie mom, this pandemic is bringing back much of the same feelings that I had when we were in isolation after Little Miss Minion got out of the NICU. The silver lining of this whole situation is that our household is uniquely prepared for hunkering down, away from germs. We are used to not going to the store as a family. We don’t usually congregate in large groups of people. I have a weekly disinfecting schedule for our house. I did these things because I wanted to keep my child healthy and out of the hospital.

When I hear stories about how people are completely disregarding the recommended safety procedures because they think it is a hoax to take down a certain president, I see red. They clearly haven’t had anyone they know get sick from it (I have). They don’t know of anyone who has died from it (I do). The fact that people are refusing to wear a mask is just absolutely astonishing to me. Masks do nothing for the person wearing them, at least the ones that non-healthcare people have. The average mask is meant to contain droplets that could contain the virus. If I do wear a mask, I am keeping my droplets from coming out into the general area around me. If you are not wearing a mask, your droplets can spray all over the place and become a source of infection for other people. People who are not wearing a mask are essentially saying that they don’t care about spreading disease. They don’t care about YOU.

Some tips for reducing your exposure from a Preemie Mom who has been there:

  1. If you have to go out, WEAR A MASK! There are very few legitimate reasons for not wearing one. If my five year old can wear one, so can you. If you can’t wear one, STAY HOME.
  2. Stay home unless you have to go out. Please note that there is a difference between HAVE TO and WANT TO. You have to buy groceries. You don’t have to browse the sale shelves or make multiple stops because the store is out of your favorite brand of cereal. Deal with it. If you can order something online, do it. Most places have free shipping.
  3. If you do have to go out, make it a quick, solo trip. You don’t need your whole family to come with you. You don’t need your spouse to come with you to the grocery store. Make a list. Get in and get out. Get everything at one place, even if this means you have to do without your favorite brand or a sale item from another store.
  4. Just because you are “out” doesn’t mean that this experience counts as one exposure. Every store you set foot into is another chance to spread the virus if you are asymptomatic, or to become infected. If you don’t NEED it, do without.
  5. Be smart about your surroundings. If many other people around you in the store are not wearing a mask, get out of the store.
  6. If you have ANY symptoms of illness, STAY HOME. I’m always infuriated by how many people have told me “its just allergies” and then they turn out to have a cold or the flu, especially when we were isolating with Little Miss Minion.
  7. When you get home, take your shoes off. Launder your mask. Wash your hands with soap. Don’t rely on hand sanitizer unless you don’t have access to soap and water. Soap is better.

The thing that makes me the most angry about this whole thing is the secondary toll that the surges are taking. Irresponsible behavior and the refusal to wear masks leads to a rise in cases, which leads to a rise in hospital beds being occupied. If all the ICU beds in an city are full of Covid patients, there is no room for the pedestrian who got hit by a car on their walk to the bus stop. There is no room for the person who is having a heart attack. There is no room for the cancer patient who is having a reaction to an unrelated virus because their immune system is already shot.

For Little Miss Minion’s last shunt surgery, we waited in the ER for several hours before a bed in the PICU opened up. And it turned out that it wasn’t even a true PICU bed, it was an overflow area that is usually reserved for pediatric cardiac patients. And that wasn’t during a pandemic. If pediatric cases increase, which they probably will if schools reopen without proper protocol, there might not be beds available for unrelated things like shunt surgeries.

Stay safe and healthy!

Don’t forget your mask!

Nearing the Exit Door

Is it possible to have a panic attack from happiness and excitement?

We are looking at a Monday morning discharge if all goes well with Little Miss Minion. She passed her car seat challenge yesterday, which means that she is cleared to sit in the car seat, plus any other inclined seat, like a stroller. She did 90 minutes for the test, and then she looked so comfortable, we let her sleep in the seat for another 30 minutes until her next cares.

She now weighs a whopping 5 pounds, 11.1 ounces. She has tripled her birth weight in 3 months. Take that, full term babies! Her due date is this Thursday and she is progressing really well. She will be 0 adjusted and she can already eat, lift her head, move her head around, half-roll over, hold her pacifier in place, move things toward her mouth, follow objects with her eyes and turns toward noises.

The hard part is going to be keeping up with Preemie Protocol (I should copyright that) once we get home. This means limiting visitors, diligent handwashing, constant sanitizing, and generally being an antisocial, germophobic hypochondriac. Oh, wait. Did I say this was going to be hard? The Minion household is already doing this. 🙂

But seriously, Preemie Protocol is very important. Being a NICU graduate is a big deal and certain precautions have to be taken for as long as possible. For example: although she can breathe normally and does not have trouble on a daily basis, her lungs are still not as mature as a full term baby’s would be. This means that they are easily irritated and more susceptible to infection. Smokers-the smoke itself is an irritant, obviously, but so is the residual scent that stays on your clothes, skin, and hair. This is known as “third hand smoke” and is a big deal for Preemies. She will be very sensitive to scents for a long time, so this also means no perfume, body spray, cologne, or air fresheners. All of these things cause inflammation of the lungs, which leaves her open to infection.

Other general Preemie Protocols:

No smoking, perfumes, cologne, or other strong odors.

No public places or places with lots of people.

No day care until 1 year old (chronological).

Wash your hands or use sanitizer before holding or touching Little Miss Minion.

She is very sensitive in all areas of sensory perception. This means that she is easily overwhelmed with too much stimulus and goes into meltdown mode much faster than a full term baby. If you are going to hold her, you need to be prepared to keep her for at least 30 minutes. While you hold her, DO NOT stroke, rock, bounce, or otherwise bother her. Preemies hate light touches, and they desperately need quiet sleep time for brain development. Just knowing that she is being held is a big stimulus for her.

She takes her bottle sitting up, tilted slightly to one side. You need to be able to see her profile to ensure that she is sucking, swallowing, and breathing properly.

If you have been in contact with a sick person, stay home. If you feel even slightly off, stay home. If you have a fever, coughing, sore throat, stuffy nose–STAY HOME. Even the slightest infection or illness could send her straight back to the NICU or PICU (pediatric Intensive Care Unit). Any illness that affects her breathing or lungs will probably put her on a respirator. And NO, I am not kidding.

Since one of the only things we will be able to do with her until her immune system matures is go on walks, I have been thinking a lot about how to shield her from random strangers trying to touch her. The nurses and the hospital discharge class have warned that, since she will be so much smaller than an average 3 month old, people will be very inclined to comment about her and try to touch her. We do have a small stop sign to hang from whatever contraption she is sitting in, but judging from the general public’s complete lack of common sense, I see this being pretty much no help whatsoever. The other option, a quick sucker punch, is a little bit illegal. What to do? I bought a baby wearing harness thing in an effort to help this a little bit. I figure that people are much less likely to try to touch her when she is so close to me, facing away from them. If all else fails, I’m betting a loud “What the F&$% are you doing?” will at least make them go away.

People seem to forget that even though she looks like a regular baby, she will always be a Preemie.